Useful links

EHLERS-DANLOS SYNDROMES

 
HYPERMOBILITY AND THE EHLERS-DANLOS SYNDROMES (EDS)Quick Facts – New Zealand Focus - Health Professional Version

This link is a short article giving the Quick Facts of EDS for busy Health Professionals and for EDSers who need some factual information.

  • If you are someone with EDS or who thinks you may have EDS, this is a great article to give to your doctor (as a link or printout) so that they can get a quick overview of EDS to better be able to help you.

  • If you are a doctor, physio etc who needs to get a handle on EDS basics, this is for you.

 

I wrote it to give the important basics with some useful links to additional information.

General Medical Information for Health Care Professionals and EDSers

ER Safety Tips for Ehlers-Danlos Syndrome Patients

Wallet card for patients to print and carry - https://ehlers-danlos.com/wp-content/uploads/walletcard.pdf

The Ehlers-Danlos Society (USA)  www.ehlers-danlos.com
RCGP (Royal College of GPs) - The Ehlers-Danlos Syndromes Toolkit
http://www.rcgp.org.uk/eds

Assessing Joint Hypermobility - video showing how to do this properly
https://www.ehlers-danlos.com/assessing-joint-hypermobility/

hEDS Diagnostic Checklist
https://www.ehlers-danlos.com/heds-diagnostic-checklist/

New Zealand EDS Online Support Group - Loosely Speaking  https://www.facebook.com/groups/LooselySpeakingNZ

Bay of Plenty District Health Board (BOPDHB) Grand Round - Ehlers-Danlos Syndromes - June 2018. Matthew Preston's presentation.   https://vimeo.com/277009100/38da6c1066

EDS - Special Info for EDSers, Their Children and Their Carers

*** Is this you?? - "I am a zebra" - a short video that encapsulates the life of an EDser
Advice for parents and schools for children with EDS
Caring for someone with EDS
Putting joints back in when they dislocate or sublux

LIFE

You will find some useful and interesting links and info in the Blog - Journey and Story