Whakatane, Eastern Bay of Plenty

New Zealand

© 2018 by Matthew Preston

Useful links

EHLERS-DANLOS SYNDROMES

 
HYPERMOBILITY AND THE EHLERS-DANLOS SYNDROMES (EDS)Quick Facts – New Zealand Focus - Health Professional Version

This link is a short article giving the Quick Facts of EDS for busy Health Professionals and for EDSers who need some factual information.

  • If you are someone with EDS or who thinks you may have EDS, this is a great article to give to your doctor (as a link or printout) so that they can get a quick overview of EDS to better be able to help you.

  • If you are a doctor, physio etc who needs to get a handle on EDS basics, this is for you.

 

I wrote it to give the important basics with some useful links to additional information.

General Medical Information for Health Care Professionals and EDSers

ER Safety Tips for Ehlers-Danlos Syndrome Patients

Wallet card for patients to print and carry - https://ehlers-danlos.com/wp-content/uploads/walletcard.pdf

The Ehlers-Danlos Society (USA)  www.ehlers-danlos.com
RCGP (Royal College of GPs) - The Ehlers-Danlos Syndromes Toolkit
http://www.rcgp.org.uk/eds

Assessing Joint Hypermobility - video showing how to do this properly
https://www.ehlers-danlos.com/assessing-joint-hypermobility/

hEDS Diagnostic Checklist
https://www.ehlers-danlos.com/heds-diagnostic-checklist/

New Zealand EDS Online Support Group - Loosely Speaking  https://www.facebook.com/groups/LooselySpeakingNZ

Bay of Plenty District Health Board (BOPDHB) Grand Round - Ehlers-Danlos Syndromes - June 2018. Matthew Preston's presentation.   https://vimeo.com/277009100/38da6c1066

EDS - Special Info for EDSers, Their Children and Their Carers

*** Is this you?? - "I am a zebra" - a short video that encapsulates the life of an EDser
Advice for parents and schools for children with EDS
Caring for someone with EDS

LIFE

Eating right - Keto might help     https://www.ruled.me/

Running - for life and some thoughts on footwear - Born to Run - after asking "why does my foot hurt?"

An example of a community of hope - where I find my people to help me through life - Curate Church