Useful links


HYPERMOBILITY AND THE EHLERS-DANLOS SYNDROMES (EDS)Quick Facts – New Zealand Focus - Health Professional Version

This link is a short article giving the Quick Facts of EDS for busy Health Professionals and for EDSers who need some factual information.

  • If you are someone with EDS or who thinks you may have EDS, this is a great article to give to your doctor (as a link or printout) so that they can get a quick overview of EDS to better be able to help you.

  • If you are a doctor, physio etc who needs to get a handle on EDS basics, this is for you.


I wrote it to give the important basics with some useful links to additional information.

General Medical Information for Health Care Professionals and EDSers

ER Safety Tips for Ehlers-Danlos Syndrome Patients

Wallet card for patients to print and carry -

The Ehlers-Danlos Society (USA)
RCGP (Royal College of GPs) - The Ehlers-Danlos Syndromes Toolkit

Assessing Joint Hypermobility - video showing how to do this properly

hEDS Diagnostic Checklist

New Zealand EDS Online Support Group - Loosely Speaking

Bay of Plenty District Health Board (BOPDHB) Grand Round - Ehlers-Danlos Syndromes - June 2018. Matthew Preston's presentation.

EDS - Special Info for EDSers, Their Children and Their Carers

*** Is this you?? - "I am a zebra" - a short video that encapsulates the life of an EDser
Advice for parents and schools for children with EDS
Caring for someone with EDS


Eating right - Keto might help

Running - for life and some thoughts on footwear - Born to Run - after asking "why does my foot hurt?"

An example of a community of hope - where I find my people to help me through life - Curate Church



Whakatane, Eastern Bay of Plenty

New Zealand

© 2020 by Matthew Preston